Head of Global Public Affairs and Advocacy Rare Diseases

The rarest challenges need rare leaders. Ipsen is growing its Corporate Affairs team with 3 key new Global Public Affairs and Advocacy leadership roles in Rare Diseases, Oncology, and Neurotoxins. Lead the way and be a part of transformative change for patients.

The global corporate affairs (CA) team lead and drive excellence in communications, public affairs, patient advocacy and sustainability within Ipsen, which together, build and protect the Ipsen brand and deliver the Group strategy to benefit our employees, patients and society.

Public Affairs and Advocacy’s mission is to help improve healthcare systems to create value for patients and societies.

The main mission of this role is to develop and implement Public Affairs and Advocacy plans that help drive the success of the rare disease portfolio, assets and brands. Integrating Public Affairs and Advocacy with Communications within the rare disease franchise allows us to set the Corporate Affairs strategies to be fully embedded in the company Brand plans.

The Head of Global Public Affairs and Advocacy for Rare Diseases is responsible for developing, driving and implementing global Public Affairs and Advocacy strategies to shape healthcare systems and improve the situation of patients affected by rare conditions and access to innovation. The PAA Head will identify gaps and opportunities and provide input into cross-functional activities centered around our assets and brands in rare diseases. He/She will work closely with other functions (communications, medical, market access, regulatory affairs, marketing)

The PAA Head plays a key role within the wider CA team.

He/She will develop strategies and build the tactics for country teams to drive the implementation at country level.

• Design and implement Public Affairs & Advocacy Strategy and Workplan across the Rare Disease portfolio at a global level to address Ipsen’s policy priorities towards Government(s), Public authorities, Institutions, Healthcare decision makers, Payers and leverage Ipsen’s unique value proposition to build reputation, influence policy, and develop mutual beneficial partnerships, ensuring Ipsen has a seat at the table in country’s healthcare policy-making.
• Based on the Strategy and key objectives, develop and lead the execution of the stakeholder engagement plan delivering the Public Affairs and Advocacy strategy to support access to our medicines.
• Represent Ipsen in strategic partnerships and multi-stakeholder platforms focused on our therapeutic area at a regional/international level. Establish mutually beneficial working relationships with key stakeholders, alliances with advocacy groups, think-tanks and other opinion leaders. Build Ipsen’s influence with key stakeholders.
• Represent Global CA as a core member of the Global Brand Teams and Asset Leadership Teams, providing strategic guidance and contributing to recommendations to key internal stakeholders, including Executive Leadership.
• Manage and lead global rare disease therapy area strategies and activities from the PA and policy perspectives, including for example: pipeline and regulatory milestones, launch preparedness, issues management, policy and access shaping.
  
  

Additionally, The Head Of PAA For Rare Diseases Will

• Map and assess policy environment across the rare diseases portfolio
• Key stakeholders, Policy and Access environment, Opportunities for advocacy
• Develop integrated Public Affairs and Advocacy strategies and drive execution at a global/regional level
• Build and co-develop PAA plans to maximize potential for our brands and shape the environment to improve and ensure fast patient access.
• Drive PAA’s integration in different decisions fora’s at global level
• Develop or join strategic partnerships (patient groups, industry coalitions, medical societies) of relevance to support PAA plans.
• Drive capability and capacity building
• Work closely with key priority geographies to support local impact
• Develop and deliver trainings and toolkits for the countries as needed
  
  

Knowledge, Abilities & Experience

Education / Certifications:

• Law, Communication, Public Administration, Political Sciences, Public Health, Life sciences degree or similar.
  
  

Profile

• Excellent leadership, influence and teamwork mindset
• Hands-on, pragmatic
• Excellent verbal, written and interpersonal communication skills
• Ability to develop, manage and deliver projects and campaigns from scratch
• Good presentation skills
  
  

Experience

• Extensive (Min. 10 years) experience of Corporate Affairs (Communications, Public/Governmental Affairs or Patient Advocacy); understanding of glocal health policy landscape and stakeholder environment.
• Extensive experience in launching new medicines/orphan drugs globally and locally and environment shaping activities to enable better and faster access to patients.
• Country Public Affairs or Market Access experience is a +
• Strong knowledge of the health policy and access landscape, with an extensive & developed network across stakeholders
• Depth of understanding of pharmaceutical / biotech landscape – policy, access, reimbursement challenges etc…
• Ability to collaborate and build relationships with industry associations, competitors (where appropriate) and stakeholders.
  
  

Languages

• English
• Other languages is a +